Rare Disease Day 2017 is on 28 February. This year’s theme is research. Share the video and find out how you can get involved!
People affected by pityriasis rubra pilaris from all over the world discuss living with the rare skin disorder
What is alpha-1? Watch this video to find out
Register for RDI international policy event ‘The right to health: the rare disease perspective’, 10 February, Geneva
Only a few places left for the EURORDIS Symposium on Access! 22 – 23 February, Brussels
Sign the #RAREvolution petition to increase rare disease research
Limited places left for the EURORDIS Black Pearl Evening & EURORDIS Awards Ceremony, 21 February, Brussels
3rd International Rare Diseases Research Consortium conference, February 8-9, Paris
Register for the EURORDIS Membership Meeting 2017, 19 – 20 May, Budapest
